News & Events

Live Well Results 2016

In June, The Speak Out Council, VoiceAbility’s voice for people with a learning disability and autism visited 2 of The Edmund Trust’s services to find out how people “Live Well”.

In total 14 people from Pauline Burnett House in Chesterton, and The Poplars Respite service took part with getting to grips with the questions about staying active, how to keep out of hospital and how to cheer yourself up.

We are pleased to announce that the results of the consultation have now been published via VoiceAbility and can be found by clicking on the following link: Live Well the results

 

To find out more about Voiceability and The Speak Out Council visit http://www.voiceability.org/services/cambridgeshire/speak-out-council

Defeating Dementia Together – Introducing a video from Cambridge Intellectual and Developmental Disabilities Research Group (CIDDRG)

A group of Cambridge University researchers have made a film alongside people with Down’s syndrome to show that there is only one way we can defeat dementia; Together. Researchers from the Cambridge Intellectual and Developmental Disabilities Research Group (CIDDRG) have been investigating the links between Down’s syndrome and dementia for almost two decades. Most recently, they have focused their efforts on using state of the art imaging techniques to look at the brains and the eyes of people with Down’s syndrome in the hope of finding a biomarker for Alzheimer’s disease. To celebrate World Down’s Syndrome Day (21st of March 2016), the research group opened their doors to the public to share their research findings, and to thank all of the dedicated volunteers with Down’s syndrome for their vital contribution to the work. The making of the film Together has given a voice to people with Down’s syndrome, as well as those who support them, to describe their experiences and show their commitment to helping themselves and others in the future.
If you would like more information about this research, or if you would like to participate in future studies, please get in touch by emailing dh-admin@medschl.cam.ac.uk.

 

The Edmund Trust services speak out on how to “Live Well”

The Speak Out Council, VoiceAbility’s voice for people with a learning disability and autism visited 2 of The Edmund Trust’s services to find out how people “Live Well”.

We talked with 14 people at Pauline Burnett House in Chesterton, and The Poplars Respite service.

11 people got to grips with our main consultation with questions about staying active, how to keep out of hospital and how to cheer yourself up.

Whilst 3 people did our High Support Needs questions on similar topics but with a little bit more hands on prompting and help from their support staff.

Once consultation elsewhere in Cambs have finished next month, results will be shared with the County Council adult social services team and other relevant professionals to make sure the voices of people with a learning disability and or autism are listened to.

We’ll leave the final word with one of our chattiest participants , “I need to live well, because I want to live longer”.

To find out more about Voiceability and The Speak Out Council visit http://www.voiceability.org/services/cambridgeshire/speak-out-council